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8/4/09

Laney Joy

Laney's tests are over and we are home again. Yesterday was difficult for my husband and I as we were faced with alot of information and even more decisions regarding Laney's health. The months to come promise to be a challenge to say the least.
We didn't make any concrete decisions yesterday regarding surgery on Laney's intestines. We are at a "wait and see" point right now. She remains in a state or chronic constipation at this point. (WARNING!!! TMI to follow!)
The doctor, during his initial exam, mentioned that Laney's "pipes" were clogged and that he could tell that she was in a great deal of discomfort. He asked permission to "irrigate the plumbing" to relieve some of her discomfort and we agreed. He also told us that she had some scarring "around her back door" where her skin had ripped in certain places because of her constipation. These were his terms (not mine) and it almost sounded funny hearing him say those phrase aloud while maintaining a serious expression on his face. Almost funny, but not quite, seeing as how he was speaking those terms in regard to my sweet baby. It was sad to hear that her little bottom has suffered so much. He also wants to repeat her endoscopy and colonoscopy soon (she's not had one since she was 2 months old) but didn't want to put her through anymore trauma yesterday. She had a voided-cysto-urethragram (VCUG) and a barium enema, as well as ultrasound on her stomach. He wants us to bring her back to do a procedure called Anorectal manometry. It sounded horrible! She will also have a pH probe (AGAIN) and a rectal biopsy.
In the mean time, we were instructed to increase her Miralax and use Pedialax as well as suppository as needed. The doctor said that if we can increase the use of stool softener, we can decrease the damage being done to her little bottom. Poor Laney already takes a ton of Miralax as it is, but I'll increase it anyway. The doc knows more than I do about these things.
I don't know the results of any of the tests they did on her yesterday or any of the lab results from the blood work, but I should here from the doctor as soon as the reults are in. Right now, we just wait. As usual.

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4 comments:

  1. Keeping you all in my prayers!! Hugs to sweet little Laney bug!

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  2. Glad you made it back home safely. I just prayed for your Delaney. I feel so bad for her, and the two of you having to go through it also.

    Jenny

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  3. My thoughts are with you and your husband and your girls. You've had a stressful few days, and I do hope that Delaney feels better very soon.
    Love,
    Jackie

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  4. Oh it just breaks my heart that she has to go through so much pain and so many troubles. But I know it breaks yours far MORE! Hugs to all of you and prayers as well.

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